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Patients’ Lived Experiences During the Transplant and Cellular Therapy Journey

Harvest and Hope
Sofort lieferbar | Lieferzeit: Sofort lieferbar I
ISBN-13:
9783031256028
Veröffentl:
2023
Seiten:
155
Autor:
Jean Coffey
eBook Typ:
PDF
eBook Format:
EPUB
Kopierschutz:
1 - PDF Watermark
Sprache:
Englisch
Beschreibung:

The book was envisioned by bedside nurses caring for transplant and cellular therapy patients as a way to teach novice nurses and health care colleagues about the care required for this complex patient population. The nurse authors recruited an oncology nurse practitioner, transplant physician, nurse scientist and expert in medical humanities and health studies to join the project team. The dedication of the team and the willingness of the patients to contribute to the project, has led to a unique case study approach focused on the lived experience of patients and care partner(s) during the transplant/cellular therapy journey. The case studies are unique in that they encompass a qualitative narrative developed using Interpretive Phenomenological Analysis (IPA) and the inclusion of the individual's actual medical and nursing care from their health record. At every step along the trajectory of the illness, the medications and care received are described, interspersed with the voice of the patient and care partner(s) sharing their experiences.
Foreword.- Introduction.- Creating a Patient-Centered Case Study.- Part A. The Autologous Stem Cell Transplant Journey.- Chapter 1. Hope and Determination.- Chapter 2. The Hugger.- Chapter 3. Spaces in Between.- Part B. The Allogeneic Stem Cell Transplant Journey.- Chapter 4. Saving Superman.- Chapter 5. Brothers in Arms.- Chapter 6. Letting Go.- Chapter 7. Another Ode to August.- Chapter 8. Dr's Orders.- Chapter 9. Am I Dreaming.- Chapter 10. With Every Sunrise I'll Do Better.- Part C. The CAR T-Cell Journey.- Chapter 11. Second Chances.- Epilogue: Saying Goodbye, Lasting Reflections and New Horizon.

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