Caring for Patients at the End of Life

Facing an Uncertain Future Together
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ISBN-13:
9780195139402
Veröffentl:
2001
Erscheinungsdatum:
22.03.2001
Seiten:
264
Autor:
Timothy E Quill
Gewicht:
381 g
Format:
234x154x18 mm
Sprache:
Englisch
Beschreibung:

In Caring for Patients at the End of Life: Facing an Uncertain Future Together, Dr. Quill uses his wide range of clinical experience caring for severely ill patients and their families to illustrate the challenges and potential of end-of-life care. Section one utilizes the near deathexperiences of two patients to explore values underlying medical humanism, and then presents the case of "Diane" to explore the fundamental clinical commitments of partnership and non-abandonment. Section two explores, illustrates, and provides practical guidance for clinicians, patients, andfamilies about critical communication issues including delivering bad news, discussing palliative care, and exploring the wish to die. In section three, difficult ethical and policy challenges inherent in hospice work, including the rule of double effect, terminal sedation, and physician-assistedsuicide, are explored using a mix of real cases and an analysis of underlying clinical, ethical, and policy issues. In a final chapter, Dr. Quill discusses the tragic death of his brother which occurred as this book was being completed, and how his family made the most emotionally challengingdecisions of their lives.Dr. Quill exposes readers to an internally consistent and practical way of thinking by simultaneously embracing the potential of palliative care, and also acknowledging that it has limitations. His philosophy of offering forthright discussions with patient and family, mutual decision-making, ensuring medical and palliative care expertise and of committing to see the dying process through to the patient's death is vividly illustrated.
I Underlying Values and Assumptions; 1: Same Old Seventeen Dollar Lamps; 2: Humanistic End of Life Care; 3: Death and Dignity: A Case of Individualized Decision Making; 4: Partnership in the Care of the Dying; 5: Non-abandonment: A Central Obligation of Physicians; II The Medical Interview: A Critical Clinical Tool; 1: Delivering Bad News; 2: Discussing Palliative Care with Patients; 3: Palliative Care for Patients with Severe Dementia: A Consensus-Based Approach to Decision-Making; 4: Doctor, I want to die! Will you help me?; III Difficult Clinical and Ethical Issues; 1: Hospice and Palliative Care: Clinical, Ethical and Policy Challenges; 2: The Rule of Double Effect: A Critique of its Role in End of Life Decision Making; 3: Palliative Options of Last Resort: A Comparison of Practices, Justifications, and Safeguards; 4: End of Life Care in the Netherlands and the United States: A Comparison of Values, Justifications, and Practices; Epilogue: All About My Brother; Appendix: End-of-Life Website Resource List

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